The Donor as Partner

During the BBMRI anniversary meeting on November 28th 2014 the guidelines 'The donor as partner' were presented.  The first copy of the guidelines were handed to Maria Jongma, president of Hevas (the Dutch organisation for patients with hemagioma’s and vascular malformations) by Professor dr. Gerhard Zielhuis (amongst others director of the Radboud Biobank and Parelsnoer).

In the guidelines the imporantance of involving both patients and patientsorganisaties in biobanks is emphasized