EGANs predecessor EAGS, European Alliance of Genetic Support Groups, was founded in 1992.
The main objectives were at that time:
- to serve the common aims of individuals and families with genetic disorders
- to promote the provision of services which meet the needs of these individuals and families
From the very beginning there was a strong collaboration with scientists. Each year EAGS and EGAN organised its annual meetings, workshops, symposia and joint sessions in conjunction with the annual congresses of the European Society of Human Genetics ESHG