EGAN’s core membership consists of:
- Genetic Alliance UK
- National Patient Alliance for Rare and Genetic Diseases The Netherlands (VSOP)
- Central & East European Genetic Network (CEEGN)
Other members include national/regional alliances in Germany and Ireland, and disease-realted patient organisations in Sweden, Spain, Italy, Greece and Balkan countries.
EGAN intends to change its statutes from an European Association under Belgium law, into an European Association, or Foundation, under Dutch law. Meanwhile, its memberships will be updated and decisions concerning new kandidate members will be postponed till this transformation has taken place.