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EGAN’s core membership consists of:

Other members include  national/regional alliances in Germany  and Ireland, and disease-realted patient organisations in Sweden, Spain, Italy, Greece and Balkan countries.

EGAN intends to change its statutes from an European Association under Belgium law, into an European Association, or Foundation, under Dutch law. Meanwhile, its memberships will be updated and decisions concerning new kandidate members will be postponed till this transformation has taken place.