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Mission and objectives

The Patients Network for Medical Research and Health is working for a voice in research and health policy and seeks a world in which genetic diseases are understood, effectively treated, prevented and the people affected supported.

EGAN’s position and policies on current issues in genetics and health care delivery: diagnosis, testing, screening, stem cells, reproductive choice, gene, cell and tissue therapy, paediatric medicines, biobanks, patenting and intellectual property and animal experimentation.

The Patients Network for Medical Research and Health welcomes collaboration with all organisations, institutions and societies which can contribute to achieving its goals.


EGAN voices and articulate a clear, patient focussed perspective on genetic and medical biotechnological issues and their ethical, legal, psycho social and cultural implications in the European political, scientific and industrial arena.