This is what we do to enhance the lives of people with rare and genetic diseases.Read more
information on genetic, biomedical, pharmaceutical and clinical research. Formally hosted on the Biomedinvo4all website.Read more
Download one of our many publications on medical research, genetic diseases and patient involvementRead more
The Patients Network for Medical Research and Health EGAN is an non-profit alliance of both National Genetic Alliances and European disease specific patient organisations with a special interest in genetics, genomics and biotechnology. Especially, but not only, genetic disorders are represented within EGAN.
EGAN is working for a voice in research and health policy and seeks a world in which genetic and other serious diseases are understood, effectively treated, prevented and the people affected supported.
EMA Webinar Orphan Designations
EMA's Orphan Medicines Office is hosting an interactive webinar on Rare Disease Day
Third International Summit on Human Genome Editing
Building on previous events held in Washington, D.C. (2015) and Hong Kong (2018), this Summit will continue the important dialo...
EGAN endorses European pharmacogenomic guidelines
European guidelines for pharmacogenomics will enable more healthcare institutions to use pharmacogenomic information in their c...